Online Family Meetings

The FA Support Family Meeting is an annual event that allows families affected by Fanconi Anaemia to attend presentations by researchers and clinical experts who are active in the research and treatment of Fanconi anaemia (FA), and to connect with other families affected by FA.  

The first day of the meeting is held at the Royal Children’s Hospital in Melbourne, where families can be informed of latest developments in research, treatment and living with FA.

Families are invited to share their experiences for the benefit of others to assist in preparing, planning, and coping with some of the hurdles living with FA brings.

Among our number are adults also living with FA that share the unique perspective of growing up with the disease and the challenges they have faced, and more importantly the hope gained from their personal achievements 

Register below to receive updates concerning the 2022 family meeting

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Meet new people and share experiences

Are you ready for some fun?

We’ll be back together soon.

In the meantime, don’t be a stranger and connect online.

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FASA Statement
on COVID-19

Because of the concern for transmission of illness caused by a novel coronavirus, Fanconi Anaemia Support Australasia is preparing for the possibility that this virus may impact our two significant gatherings: the SNUG camp meeting (Lake Macquarie, August), and the FAmily meeting (Melbourne, October). While it is too early to predict how these events may be affected, we want you to be aware that we are mindful of the risks associated with gathering at this time. We will also be carefully monitoring the appropriate health authority recommendations for protecting against exposure provided by the Australian Medical Association (AMA) and the World Health Organization (WHO).
The National Organization for Rare Diseases (NORD) recommends that you speak with your doctor to see how they may be able to advise you if you should become exposed to the virus. Finally, should you or a loved one need to travel, review the Australian Government’s Department of Health guidelines to ensure you aren’t putting yourself or others at risk.
We will continue to monitor and follow guidance from the AMA, the Australian Government, and other agencies and communicate with the FA community directly as the situation develops.