FA Support Family Meeting

April 15 – 18th, 2021

15 - 18th April 2021

The FA Support Family Meeting is an annual event that allows families affected by Fanconi Anaemia to attend presentations by researchers and clinical experts who are active in the research and treatment of Fanconi anaemia (FA), and to connect with other families affected by FA.  

Meeting Program

Friday: Families arrive and enjoy local and international experts and perspectives at the Royal Children’s Hospital conference room in Melbourne. Information will be shared regarding a new study for early detection of head and neck cancer for individuals with FA as well as bridging clinical- and lab-based research. Dinner provided at Urban Camp. Families will also have the option to consent to the study and have mouth swabs completed at the hospital.

Saturday: Breakfast, lunch, and dinner provided at Urban Camp and a fun activity will be planned to promote socialising and networking— to be announced. Families are encouraged to join us for what is bound to be a great evening of games and entertainment centered on our community.

Sunday: Relaxation time in the morning and a debrief of the weekend, as well as dates for 2021 announced. Breakfast will be provided at Urban Camp followed by a final farewell as families depart Camp to foster the connections made in Melbourne.

Meet new people and share experiences

To help prevent information overload, there will be plenty of breaks and opportunities to meet and talk over coffee and cake.

Are you ready for some fun?

Finish the weekend with a great social outing or activity

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FASA Statement
on COVID-19

Because of the concern for transmission of illness caused by a novel coronavirus, Fanconi Anaemia Support Australasia is preparing for the possibility that this virus may impact our two significant gatherings: the SNUG camp meeting (Lake Macquarie, August), and the FAmily meeting (Melbourne, October). While it is too early to predict how these events may be affected, we want you to be aware that we are mindful of the risks associated with gathering at this time. We will also be carefully monitoring the appropriate health authority recommendations for protecting against exposure provided by the Australian Medical Association (AMA) and the World Health Organization (WHO).
The National Organization for Rare Diseases (NORD) recommends that you speak with your doctor to see how they may be able to advise you if you should become exposed to the virus. Finally, should you or a loved one need to travel, review the Australian Government’s Department of Health guidelines to ensure you aren’t putting yourself or others at risk.
We will continue to monitor and follow guidance from the AMA, the Australian Government, and other agencies and communicate with the FA community directly as the situation develops.