Bringing together people & families affected by FA

Fanconi Anaemia Support Australasia (FASA) is a membership-driven volunteer organisation which aims to unite and inform the FA community in Australia, New Zealand and beyond.

Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological, head and neck cancers, together with other complications both in childhood and in later life.

Registrations

Now Open

FA Support Australasia

Family Meeting

October 30 - November 1, 2020

Melbourne, Australia

Come together in Melbourne to share our experience, update our knowledge, make new friends, and have some fun!

Join a Research Project:

Early detection of mouth cancer

FA Camp 2020

A long weekend of fun for children with FA and their families*

Friday 14th August - Monday 17th August

  • Lake Macquarie, NSW

Register your interest

*Australian residents only
Limited places available

Held at Point Wolstoncroft Sports and Rec Centre on the beautiful Lake Macquarie in New South Wales.

Accommodation, all meals and a great program for five lucky families.  Now taking expressions of interest.  Get in quick!

Join Us

Fanconi Anaemia Support Australasia is a membership based organisation. Please sign up now – it’s free – so we can keep in touch from time to time and strengthen the network of FA family and friends.

Join the conversation

Got a question? Looking for advice? Need to vent?

The FA Australia/New Zealand Facebook group has been chatting and supporting each other for many years. Now they’ve adopted FASA and have become our first social media meeting place. All FASA members are invited to stop by, join up and say hi. We’ll post information on upcoming events to that Facebook page as well as to our home website.

Donations & Fundraising

Support FASA

FASA is a work in progress. We will need to raise some funds to cover expenses and support new activities for our FA community. We intend to apply for charity status in the near future, but for the moment donations are not tax deductible. If you would like to leave a gift you can do so here

FA Research

If you would like to make a tax deductible donation towards research into Fanconi Anaemia you can do so through the St Vincent’s Institute, where FA research in Australasia is based.

FASA acknowledges the generous support of the Fanconi Anemia Research Fund (FARF) in the United States.

© Copyright 2020 Fanconi Anaemia Support Australasia Inc.

Website by ALAN

FASA Statement
on COVID-19

Because of the concern for transmission of illness caused by a novel coronavirus, Fanconi Anaemia Support Australasia is preparing for the possibility that this virus may impact our two significant gatherings: the SNUG camp meeting (Lake Macquarie, August), and the FAmily meeting (Melbourne, October). While it is too early to predict how these events may be affected, we want you to be aware that we are mindful of the risks associated with gathering at this time. We will also be carefully monitoring the appropriate health authority recommendations for protecting against exposure provided by the Australian Medical Association (AMA) and the World Health Organization (WHO).
The National Organization for Rare Diseases (NORD) recommends that you speak with your doctor to see how they may be able to advise you if you should become exposed to the virus. Finally, should you or a loved one need to travel, review the Australian Government’s Department of Health guidelines to ensure you aren’t putting yourself or others at risk.
We will continue to monitor and follow guidance from the AMA, the Australian Government, and other agencies and communicate with the FA community directly as the situation develops.